Diary of Unknown Symptoms

Mystery of the Internal Vibration

Entry for August 29, 2006

From the prevous entry:

I ask him if there is any kind of test that could measure any kind of demyelination and he answered “No not really…”

Here’s what I found:

Nerve Conduction Velocity (NCV) Test

What is it?
A nerve conduction velocity test, also called a nerve conduction study, measures how quickly electrical impulses move along a nerve. It is often done at the same time as an electromyogram, in order to exclude or detect muscle disorders.

A healthy nerve conducts signals with greater speed and strength than a damaged nerve. The speed of nerve conduction is influenced by the myelin sheath the insulating coating that surrounds the nerve.

Most neuropathies are caused by damage to the nerve’s axon rather than damage to the myelin sheath surrounding the nerve. The nerve conduction velocity test is used to distinguish between true nerve disorders (such as Charcot-Marie-Tooth disease) and conditions where muscles are affected by nerve injury (such as carpal tunnel syndrome).

Why should I do it?
This test is used to diagnose nerve damage or dysfunction and confirm a particular diagnosis. It can usually differentiate injury to the nerve fiber (axon) from injury to the myelin sheath surrounding the nerve, which is useful in diagnostic and therapeutic strategies.

How is it performed?
During the test, flat electrodes are placed on the skin at intervals over the nerve that is being examined. A low intensity electric current is introduced to stimulate the nerves.

The velocity at which the resulting electric impulses are transmitted through the nerves is determined when images of the impulses are projected on an oscilloscope or computer screen. If a response is much slower than normal, damage to the myelin sheath is implied. If the nerve’s response to stimulation by the current is decreased but with a relatively normal speed of conduction, damage to the nerve axon is implied.

And perhaps the best of all…I found this about Benfotmaine. The supplement that the Neurologist had never heard of:

Shielding Nerve Structure

While most anti-AGE supplements rely on test-tube browning experiments as the evidence of efficacy, Benfotiamine has been proven in multiple real-world human and animal studies to reduce AGE formation and support tissue structure and function in diabetics.

Most impressively, many randomized, double-blind, placebo-controlled human trials have proven that Benfotiamine powerfully supports nerve function in diabetic neuropathy. In one trial, 24 people suffering with diabetic neuropathy took either Benfotiamine (plus doses of common B6 and B12 similar to those used in mutivitamins) or a look-alike dummy pill, spread out into three pills over the course of the day, for twelve weeks. The participants started with 320 milligrams of Benfotiamine per day for the first two weeks, followed by 120 milligrams for the rest of the trial. Before and after the trial, the function of patients nerve cells were tested using nerve conduction velocity (NCV) and vibratory perception threshold (which tests the nerves sensitivity by determining the lowest level at which vibrations applied at key nerve sites are first felt).

At the end of the trial, the vibration perception threshold had clearly improved by 30% in those who had taken the Benfotiamine supplements, while it had worsened in the placebo group by 5% at one site and by 32% at another. At the same time, people taking Benfotiamine experienced statistically significant improvements in nerve conduction velocity from the feet, even as this aspect of nerve function deteriorated in those taking the look-alike pills.

This is exactly why I don’t like doctors anymore.

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August 29, 2006 Posted by | Health | , , , | Leave a comment

Entry for August 29, 2006

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The Neurologist…

He called my name as he entered the waiting room. It was his first appointment of the day and there was no one else in the room. I ask him if it’s okay to allow my wife to sit in with us and he agrees. He says he has very little on my symptoms and history so he’s eager to hear my story. The only thing he received from my doctor was that I had an internal tremor and that taking a supplement called Benfotamine was helping me. He had never heard of Benfotamine and I knew I was in trouble from this moment on…

I wanted to come prepared for this appointment but I just never had the time. I’ve explained my history of symptoms so many times that I’m confident that I can do it again without any notes. It all started with the internal vibration, the plantar fasciitis, indigestion and the stomach bloating. When I mentioned that I thought there was a link between the internal vibration and the plantar fasciitis, he gave me the smug doctor smile. “Another patient who thinks he knows what he’s talking about…”

I don’t mention the EMF exposure as I thought I would see how he reacts first. Then we talk about the successes: B vitamins, minerals, acidophilus and omega 3. He is writing notes the entire time I am talking. After I finish, he invites me into an examination room and performs a number of tests.

He holds a small bottle under my nose and asks me if I know what it is. It smells like lemon. He holds a second bottle under my nose and asks me the same question again. This time it has a minty smell and I’m correct again. He holds up three fingers and takes them down again real fast and he asks me how many I saw. He covers one of my eyes and asks me to read the smallest numbers on his eye chart. Switches to my other eye and does the same thing again. He then checks my reflexes on my wrists, knees and just above my feet. He shines a small flashlight into both of my eyes and asks me to follow his fingers. He turns off the lights and he shines the light into my eyes again. He turns the lights back on and everything took about ten minutes.

We walk back into his office and I sit beside my wife again. He starts by saying that I am an intelligent person and was very diplomatic in his speech. He said he could say with great confidence that I didn’t have any kind of neurological disease and talks about certain things I had mentioned. He asked about my parents, my marriage and the new baby.

He said he didn’t like to pigeonhole people but that I have a profile of anxiety. His recommendation was to seek help by seeing a psychologist or a psychiatrist. He said there was medication that could help me but the effects are not often seen for weeks. He cited the first child as being very stressful and that sometimes, for whatever reason, anxiety can be caused when there is a chemical imbalance within the brain but he didn’t think that was the case with me.

I added a few new things like the test that came back with a high level of free radicals and stressed adrenals. He nodded his head in agreement and said stressed adrenals is a classic symptom of anxiety. He asks if I have any further questions and I ask him if he thought a high level of free radicals could destroy the myelin sheath and he felt there wasn’t enough study in that field of research. I ask him if there is any kind of test that could measure any kind of demyelination and he answered “No not really…”

An internal vibration, tingling in my head and a neurologist tells me I have anxiety. What a complete waste of time. It’s possible I have anxiety now because I have to keep dealing with these know it all doctors who know nothing about nutrition but I am still looking for the root cause. I don’t have a stressful job, I’m not a person bothered by stress, in fact, I’m a very calm quiet person. Family life is good and I have a great group of close friends. If he thinks anxiety is the root cause of my internal vibration then he is completely wrong. My direct symptoms are never affected by any amount of stress.

It’s the classic case of a doctor looking for disease and when he doesn’t find anything obvious, the assumption is that everything is perfectly normal. Another doctor who has no interest in prevention. A ten minute exam and he comes back with anxiety. The only way he could’ve done that is to have used the pupil analysis and discovered those upward pointing lines that I saw in iridology.

When I left his office, I could tell my wife knew I wasn’t satisfied with his answers. In fact, I was furious.

I wasn’t mad about the diagnosis of anxiety, I was more pissed off because he didn’t seem to want to do anything to help me. I was under the impression that a Neurologist is a specialist who has a very advanced understanding about the human body. Well, not this one…

What a complete waste of time!! I feel like Charlie Brown and Lucy has just taken the ball away.

August 29, 2006 Posted by | Health | , , | Leave a comment

Entry for August 28, 2006

The Neurologist appointment is tomorrow and it may be the first time that a doctor understands when I tell him that I have an internal vibration.

I had a thought today. If I know I have some kind of demyelination with the nerves in my head, is it then possible that the actual process of demyelination can cause a vibration?

Tomorrow, I’ll be face to face with the perfect person to ask.

August 28, 2006 Posted by | Health | , | Leave a comment

Entry for July 31, 2006

My Doctor’s office called me today. I have an appointment with the Neurologist on August 29th. One month to see a specialist, that’s better than I expected. I thought it would be a lot longer…

Followed up with Sick Kids and the pharmacist said she spoke to the person who actually places the orders and it has never been ordered and it is not possible to get it. She said if I do find it, I don’t need a prescription and that I should be able to order it for personal use.

Holding out for Romania!!!

July 31, 2006 Posted by | Health | , , , | Leave a comment

   

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