Diary of Unknown Symptoms

Mystery of the Internal Vibration

Entry for July 21, 2006

Into the doctor’s office again for the mysterious internal vibration. He walks into the room and since I haven’t seen him in six months he asks me how he can help me today. I explain that I still have the internal vibration and for the past six months, I’ve done my own research and have a hunch that it’s related to a Riboflavin deficiency. I continue my story with the effect of a supplement called Benfotamine and explain about how the B1 blood test came up normal.

He thought it was weird that I relied so much on a B1 suppliment when there wasn’t a deficiency. I’ve had the vibration for over a year now and he suggests going to see a Neurologst. With Benfotamine having an effect on my neurological symptoms, he suggests that I may have something called Wernicke’s Encephalopathy. I’ve come across Wernicke’s Encephalopathy before as you can get it from untreated Beriberi.

So I continue explaining my research about how vitamin B1 is essential for creating the myelin nerve sheaths and how a B2 deficiency can cause the reduction of them. One of the symptoms includes a vibration feeling along with dry itchy eyes that are sensitive to light and the chapped lips and how I’ve had both for years. I’ve been taking B complex and high doses of B2 for months with no improvment so I tell him about the fat soluble version of B2 called Riboflavin Tetrabutyrate. He pulls out one of his large medical books and he doesn’t find it listed. He pulls out a second, then a third.

One of the books mentions about the treatment of a Riboflavin deficiency using B2 injections. He can’t find the supplement in his medical books so he suggests that I try the pharmacies to see if they have it. If they do, he’ll write a percription for it. Failing that, he’ll do the injections.

This is great news!!! I check at the pharmacy in his building for Riboflavin Tetrabutyrate. They don’t have it in their computer but she suggests going to a hospital pharmacy as they might have more distributors to order from. Great idea! Sunnybrook is one of the largest hospitals in the city, it’s close by and on the way home.

I stop into the Sunnybrook pharmacy and ask for Riboflavin Tetrabutyrate. After a bit of research she pulls up nothing. One of Toronto’s largest hospitals and they don’t have it and can’t order it for me.

July 22, 2006 - Posted by | Health | , , ,

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